About

6-24-2017-1-114Our son Christopher Lake Michaelson was a typical happy, healthy little boy full of sunshine. At 6 years old Christopher began to suddenly start loosing his vision which continued to progress rapidly. After two years of searching and at only 8 years old we received the news that Christopher has Juvenile Battens Disease. BattensĀ disease is a genetic neurodegenerative disease that will slowly strip Christopher of all of his abilities eventually leaving him bedridden. Battens Disease is always fatal and will only give us 15-25 years with our amazing little boy. We have created this page as way to document our family’s journey and to give others the chance to walk along side us as we travel this path of rediscovering life with a fatal disease.